I’ve been thinking of the different milestones in this journey of mine as “wayposts”. You know, kind of like Rivendell, the last homely house east of the sea. Stopping points, if you will, to look back and assess the journey so far. Sometimes, one has to change the game plan to reflect a new situation, or in light of new information. The Fellowship was formed, after the true nature of the ring was revealed. Dumbledore began giving Harry more information, when he realized that He Who Must Not Be Named was getting stronger. Michael Corleone went to the bathroom in a pasta joint and retrieved a gun from the toilet tank, after his father was shot. You get it, I know.
Continue reading “Waypost #1 – Medication”Author: Sally Kemp
That Sly Cricoarytenoid…
Do you remember the movie Terminator 2? Poor Sarah Conner. She knew that there was an alien shapeshifter prowling around, and no one believed her. Actually, they thought she was a bit off-balance, and locked her up.
One of the most puzzling (and scary) symptoms that I’ve experienced since my foray into the world of autoimmune disorders has been my continual sore throat. I now know that it is an inflammation of that sly cricoarytenoid joint, oh so elusive, but like an alien shapeshifter, hiding in plain sight.
Continue reading “That Sly Cricoarytenoid…”Costochondritis
I don’t have a catchy movie analog for this one (although any good scavenger hunt movie will do). But it’s worth mentioning because it’s a fairly common symptom in the world of autoimmune disorders, and it can closely resemble a heart attack, so awareness is key.
Continue reading “Costochondritis”Find Your Tribe
I know it seems kind of obvious, but could Luke have succeeded without Han and Leia? Could Frodo have accomplished his mission without Sam Gamgee? Harry had Ron and Hermione, and Thelma had Louise. Everyone going on a journey needs some friends.
Continue reading “Find Your Tribe”Believe Yourself
If I’ve said it once…I’m not a doctor. So I actually have no idea what it takes to diagnosis person “x” with illness “y”. But after 10 doctor visits and 6 diagnostic procedures in the last 4 months (I know, it’s crazy math), I was beginning to feel like Ingrid Bergman in the 1944 movie Gaslight. You know, the one where the main character is being convinced that she is imagining things, and that she is insane. She sees the gaslights in her house randomly dim and brighten, with no explanation, and begins to doubt her grip on reality.
Continue reading “Believe Yourself”Systemic Illness
I think one of the things that shocked me the most when I started learning about RD (Rheumatoid Disease) was the fact that it was “systemic”.
Okay, so I didn’t really even know what that word meant.
Continue reading “Systemic Illness”“Promise me you’ll always remember: You’re braver than you believe, and stronger than you seem, and smarter than you think”
What is a “Reluctant Hero” and what the heck does it have to do with my immune system ?
I love stories, and story-telling. My heroes have always been the characters in my beloved books. I’m not an author, but I love studying the art of crafting a good story. As it happens, this is a fundamental trait of humans, this love of story. It’s deeply rooted in our collective consciousness, a part of who we are.
Continue reading “What is a “Reluctant Hero” and what the heck does it have to do with my immune system ?”Immune System 101, a Star Wars Analogy
In keeping with the “story” model mentioned in a previous post, allow me to liken the immune system to a galactic space battle. Let’s just say that there was, for instance, a planet that the Rebel Alliance was trying to protect and keep safe at all costs. In this analogy, that is the human body.
The Rebel Alliance selects their best fighter pilots to protect the planet. Meet your immune system.
And what are they protecting the planet from? Those fiends from the Dark Side, the Storm-troopers and the Siths – enter the germs and diseases that your immune system is trying to ward off.
Now think about their fighter jets. The rebel alliance flew around space in their cool Jedi fighter planes that were sort of shaped like a classic paper airplane, and on the other side, Darth Vader and the other bad guys from the Empire had those weird looking Tie-Fighter planes that resembled a couple of black pancakes.
My point is, the Jedi pilots knew what to aim at, because each side’s fighter planes were so distinct looking.
Now imagine that all of the planes look exactly the same, and everyone is just shooting at each other randomly. Firebombs, destruction, chaos and flames shoot across the galaxy.
There. That’s an autoimmune disorder. Talk to ya later.
Okay, so I was making a point. The immune system is a mysterious, inter-connected defender of a normal healthy body. It consists of cells, tissues, proteins and organs, which are constantly on the lookout for invading pathogens. If the body encounters a dangerous organism, the immune system kicks into gear and launches an attack against the particular “antigen” or invader. It’s an extremely efficient system, one in which some elements of the immune system single out the invader, while other elements are left to make the kill. It all works beautifully to keep a person healthy.
Except when it doesn’t.
Sometimes, the immune system gets confused, and attacks itself. This is what is known as an autoimmune disorder.
There are more than 100 different types of autoimmune diseases. Some of most common are:
- Type 1 Diabetes
- Rheumatoid Arthritis
- Multiple Sclerosis (MS)
- Systemic lupus erythematosus (SLE)
- Crohn’s Disease
For some reason, in recent years, the number of cases of people with autoimmune disorders has increased. There are multiple theories regarding why, and what might trigger the body to attack healthy cells. No single theory has been proven correct.








